November 1, 2010 is Bloggers Unite For Autism. If you have not signed up to participate, please don’t let that stop you from publishing a post about Autism. This blog hop is not just for autism bloggers. It is for all bloggers to help spread autism awareness, and to educate those that may not be familiar with the spectrum of disorders that are on the rise in the United States.
I came up with Bloggers Unite For Autism as a response to the Communication Shutdown that is going on today. Participants participate by making a small donation that goes towards autism related organizations, and the participants agree to not use Twitter of Facebook for the whole day. This is symbolic of how most autistic individuals have communication issues. My son is completely nonverbal, so I really get the symbolism in the Communication Shutdown.
Some people think that I am against the Communication Shutdown. I am not. Anything that helps bring about awareness, unites people in our cause, and raises money for autism organizations, has my support. I just feel that there are many people that this event will not be reaching. That is where Bloggers Unite For Autism comes in. There are thousands of bloggers on the internet. If only a small amount of them participate in Bloggers Unite For Autism, millions of people can be reached.
For my autism post today, I would like to share a personal story. If you would like to participate, but don’t know what to post about, please feel free to use my post. This is one time that I do not mind if my content is duplicated around the blogosphere. I only ask that you credit me and include a link to this Bloggers Unite For Autism.
My son is 11 years old. He is completely nonverbal. He also has extreme sensory issues with his hands. This makes it extremely difficult for him to communicate. He doesn’t like to touch a keyboard. He doesn’t like to touch a computer screen. He doesn’t like to hold a writing instrument. He does, however, love Shania Twain. Recently, we have discovered that his love for Shania Twain’s music will give him the incentive he needs to communicate and complete tasks.
My son gets frustrated easily. When he is frustrated, it is harder for him to perform tasks and communicate. This is difficult for me, because it is when he is frustrated that I really need him to communicate with me. How can I help him if I don’t know what is wrong?
My son also has difficulty focusing on one task and processing information that is told to him. For him to stay put long enough to communicate with a person can be challenging. He is very much in the moment. He thinks it, and then moves on. He doesn’t want to take the time to communicate his thoughts, because he has already moved on in his mind to something else.
In the past month, he has been taking the time to communicate using his TapToTalk and the Boardmaker program. This is thanks to Shania Twain, and I am very appreciative of how her music has touched my son. My son is also happier these days. He is understood in school, and has been given a program that allows him to succeed. I am grateful to the staff at my son’s school for gearing his environment to promote his success.
I would like to leave you with a way to understand my son better. In doing this, you will understand autism a little better. Go a day without communicating. Do not communicate verbally, in writing, or by shaking your head yes or no. My son still does not understand how to indicate yes or no with his head. Your form of communication should be by pointing. Of course, this will only work if you are around other people, and communication is important. What would be the point of doing this if you are alone all day? Let me know how long you last before you have to revert back to speaking.
I am posting a day early to give everyone a chance to put theirs together for tomorrow.
I copied the code for the original linky to Bloggers Unite For Autism. Whether you link up your post to the original post I published, or to this one, your link will appear. Please link up your post directly. If you have already linked up your blog, that is fine. Here on in, though, please link up your Bloggers Unite For Autism Post. Thank you.