I was over on My Five Men, reading her random thoughts post. In it, she mentions having to file for guardianship of her eighteen year old autistic adult child. I was like, WHAT! I have to file for guardianship of my son when he turns 18? I think it was mentioned at an autism conference I went to, years ago. I completely forgot about it. My son was just a little boy back then. I didn’t need to think about that. I had bigger issues to think about at the time.
Now, my son is 13 years old. He is still low functioning and completely nonverbal. There is no way he will be able to take full control of his life when he turns 18. I still have time before I have to officially worry about this, but time has a way of passing by quickly. What other things do I need to start thinking about now.
When My Autistic Child Becomes an Autistic Adult
When my son becomes an autistic adult, is he going to live at home? Will he be able to live in a group home? Would I want him to live in a group home? I’ve heard so many horror stories of facilities and group homes. I’ve heard a few good things, but not many. I know there are some out there, but how do you figure out which are good and which are bad?
Back to filing for guardianship for your autistic child. Have you done it? What did you have to do? Do you have to hire an attorney and go to court? And what about Power of Attorney? If I get guardianship, than I don’t need Power of Attorney, right? Not that my son can sign a Power of Attorney, but in five years that might change. A lot of things could change between now and then. I want to be prepared if they don’t.
How about SSI and Medicaid? Don’t those change when he turns 18? Will I be back on the red tape parade with them to get him benefits and coverage, or will they roll over? My head is spinning. Now I remember why I placed all of this on the back burner.