It’s been a difficult time for my family. My daughter is scheduled for ear surgery. She has a cyst in her ear that needs to be removed. My son had a tube removed yesterday, and an ABR. An ABR is a hearing test that they were able to do while he was asleep. My autistic son had one done when he was younger, and it showed a slight hearing loss in his right ear.
This time, the test showed that and a moderate to severe hearing loss in his left ear. The doctor also found an obstruction in his eardrum. She doesn’t know what it is. It could just be a cyst, or it could be something else. We have to schedule a scan to find out. Because my son won’t be able to sit through a scan, he’ll have to be asleep for it.
I am scared. I am holding it together, for my kids. I am handling this as best as I can. I have to be strong for my son. I am worried about him. He has had such a hard time of it, and I hate that he is going through this. I can tell that he is in pain, and that breaks my heart. I wish I could make this easier for him.
We need to discuss getting a hearing aid for my son. I just don’t think that he would allow that. I don’t think that he would keep one in. He might, over time, get used to wearing one. If we end up getting one for him. I want to wait until the obstruction is diagnosed, and know for sure if the hearing loss is permanent. This is going to be a process. I will take it one day at a time.
There is some good news. My son is getting better with sign language. He has been learning and signing a new word each week. It’s great to be able to communicate with him in this manner. My daughter is learning the signs, too. I have a sign language book, and we have all been learning some basic signs.
Things are changing. Some good and some bad. Through it all, my family has stayed strong. We have supported each other, and are closer. Together, we can handle anything. The holidays are coming. I’m worried about Christmas this year. Each year, it’s a struggle to provide my children with what they want. Now that they are both getting older, their Christmas wish list gets more expensive. I’ve depended heavily on relatives to provide some of the items on their list. Right now, the only thing I want for Christmas is for both of my kids to be healthy.